April, May, June.
As always the past few months have been very up and down.
The joy of Ashley being pain free sadly didnt last very long. Whilst on a day out with FAN to Legoland Ashley developed pain in his legs, we had another reveiw with Ashley's consultant and again we had that hard conversaton wether to continue with treatment or just manage the pain. Ashley's dad and I have always lived by the phrase "were there is life the is hope", so we continued with treatment. this time of a mix of cyclophosamide, topitican and this time, also eptopiside.
After the first round we had a very special night out; Ashley was presented with a little stars bravery award from the liberty rose trust. It was a lovely night and Ashley had his award presented by Darth Vader and the 501 Garrison (The storm troopers that visited him in hospital at Oxford previously). However the celebration was cut short as Ashley became unwell the following morning, we returned home. Blood tests showed Ashley had developed a very nasty line infection, which thankfully they managed to get on top of and clear. Ashley then had another 2 rounds of this mix of chemo it reduced the pain in his legs. in may/june we enjoyed a day at Drayton Manor,a starwars convention at the leiste space center, a weekend at Alton Towers with FAN (Families Against Neuroblastoma) and Ashley was able to go swimming as FAN very kindly purchased a special dry suit to wear in the water :), a day at Gullivers Land, Post Pals chidrens party and another weekend at Alton Towers with FAN, spending time as a family enjoyng life.
Recent tests showed that Ashleys bone marrow still has alot of disease, more than the previous. Though Ashley has not had cancer related pain for some weeks now (cross fingers, touch wood etc ).
